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The Language of Bioethics (Glossary)

Objectives

Goals

Required Reading

Discussion Questions

Clinical Vignettes

Maternal–Fetal Conflicts

Principles of Reproductive Freedom

Ethical Issues Related to Assisted Reproduction Techniques

Major Contributors to the Discussion of Reproductive Health & Technology Issues

Guiding Legal Principles

Suggested Reading/References


References & Resources

 

 

 

Reproductive Health Issues

Objectives

To explore the interaction of physician and patient in the arena of reproduction, within a pluralistic society, with consideration of increasing technologies requiring a host of moral and ethical decisions, and involving interaction of women, their partners, health care providers and government.

Goals

  1. To understand the physician's ethical obligation to discuss all reproductive health options with his/her patient (i.e., full informed consent)
  2. To understand the issues of maternal and fetal rights and when there may be a conflict.

Required Reading

  1. Ethics Manual, Fourth Edition, American College of Physicians
    "Decisions about Reproduction"
  2. Code of Medical Ethics, American Medical Association,
    "Abortion," 2.01
    "Mandatory Parental Consent to Abortion," 2.015
    "Artificial Insemination by Anonymous Donor," 2.05
    "In Vitro Fertilization," 2.14
    "Frozen Pre-Embryos," 2.141
    "Pre-Embryo Splitting," 2.145
    "Surrogate Mothers," 2.18
    Note: Many of these AMA statements are in Doctor's Dilemma
  3. Introduction to Clinical Ethics by Fletcher, Miller, Lombardo, and Marshall. Second Edition.
    "Reproductive Issues," p 205-225

Discussion Questions

  1. Does a pregnant woman have the right to make reproductive choices including termination of the pregnancy?
  2. Is the fetus "a person" with interests and rights that must be protected?
  3. Do the rights of the pregnant woman override the fetus' "right to life?"
  4. Can the state intervene to protect the fetus from "irresponsible" harm by actions of the pregnant woman?
  5. Who bears the responsibility for contraception? Have reversible contraceptive techniques for men kept pace with that for women?
  6. What obligations exist for physicians to offer all available assisted reproductive technologies to infertile couples?

Clinical Vignettes

Why Not Two to One? Introduction to Clinical Ethics by Fletcher, Hite, Lombardo, & Marshall (2nd Ed.), p 210.

The Case of Angela Carder
Adapted from the Journal of Medical Ethics . 1996; 22: 327-333.

In 1987, Angela Carder was diagnosed as having terminal cancer of the lung. She was twenty-five weeks pregnant and it was expected that she would only survive for a week. Angela had lived under the shadow of cancer since she was thirteen, but had thought herself to be in remission when she planned her pregnancy. Whilst insisting that her own comfort must be the primary consideration, she agreed in principle to consent to any treatment which might enhance the survival prospects for her baby. Her husband, parents and physician were in full agreement with these wishes. Almost a week later, she refused her consent for a caesarean section and the hospital decided to seek legal advice. Angela believed that it was unlikely that such an immature fetus would survive, and that if it did, it would be likely to suffer multiple disabilities. Emmett Sullivan, the judge appointed to the case, decided that the pivotal issue was the fetus's chances of survival and what was in it's best interest granted it's mother's terminal condition. He ordered the caesarean section to take place. Angela still refused to consent so Sullivan again listened to both counsels but reaffirmed his original decision. Less than one hour later and with the c-section planned to occur within fifteen minutes, Angela's counsel argued that the operation would shorten her life and was not therefore in her best interest. Against this it was argued that she had no interest as she was dying. Sullivan cut across the ensuing argument by asking who had the best chances of surviving, the mother or the child. The answer was that the baby did and so he again ordered the operation to take place. The non-viable fetus died two hours after the caesarean was performed. Angela died two days later. At no point in the proceedings did Sullivan speak to Angela personally. In 1990, two appeal hearings later, the District of Columbia Court of Appeal reversed Sullivan's decision, not for the benefit of Angela, but to avoid setting a precedent for future cases.

HIV and Pregnancy

Ms C is a 25 year-old HIV-positive mother of a two-year old child. When she presented to her primary care physician at 20 weeks' gestation for her first prenatal visit, she encouraged her to start taking AZT to prevent or minimize the risk of HIV transmission to the fetus in utero or at the time of delivery. She refused to take AZT, and had only one additional prenatal visit at 28 weeks. Ms C, pregnant in her 34th week, presented today in preterm labor; her membranes rupture 8 hours before she came to the clinic. She is admitted and delivers her preterm infant who weighs 2,000 grams. The baby has respiratory distress, hypotension, and cyanosis. Management for respiratory distress, hypotension, and presumed sepsis are only marginally effective in improving the baby's status. An echocardiogram is performed and reveals an underlying cyanotic congenital heart lesion requiring urgent palliative surgery and possible transplantation in the long term in order to offer any hope of continued survival. Any heart surgery will have to be performed at another institution, located some 500 miles away and out-of-state. Ms C's primary care physician, her baby's Pediatrician and her baby's Cardiologist are not in agreement about what the best course of action is at this point.

Fetal Distress at Term

Mrs. D is a 30 year old mother of twins who is pregnant with a singleton at 39 weeks' gestation. She presented with regular contractions last night; her cervix, however, has failed to dilate beyond 3cm. She desires a "natural childbirth" without analgesics, episiotomy, or any operative assistance (to include forceps delivery or cesarean section). Her physician has gone along with this plan but always maintained during prenatal visits that she must consider the "second" patient...Mrs. D's unborn infant...should any problems develop. Mrs. D never understood what "problems" her physician might be alluding to, but reiterated "No medication, no surgery."

Late in the evening, after laboring for more than 20 hours there fetal heart rate tracing became concerning. Mrs. D's physician informed her that the baby may be in jeopardy and could encounter a problem with its circulation or oxygen delivery if the monitoring strip did not change. She performs a pelvic exam, still finding the cervix at less than 4cm. She initiates some "non-invasive" conservative measures for Mrs. D and then witnesses a sharp decline in fetal heart rate. Concerned about placental abruption and bad outcome for the fetus/newborn, she recommends a STAT cesarean section in view fetal distress. Mrs. D insists "No surgery."

Maternal–Fetal Conflicts

A moral dilemma exists when a physician believes he has a moral obligation to follow two conflicting courses of action, such as when the physician believes he must respect a pregnant woman's decision (autonomy) when the decision conflicts with the physician's obligation to protect the fetus. (non-maleficence and perceived best interest)

Principle of Reproductive Freedom

A woman has the right to make her own reproductive choices, including termination of pregnancy. Conflict arises as some feel this principle is morally objectionable, and overrides any "right to life" of the fetus. This view, rests on the controversial presumption that the fetus is a person. Finally, if a pregnant woman does decide to carry her pregnancy to term, she has by this act implied obligations to the fetus.

Ethical Issues Related to Assisted Reproduction Techniques

  1. What is the role of the government in intervening in any of the following situations?
    Refusal of HIV testing
    Substance abuse
    Voluntary v. non-voluntary intervention
    Infringement of personal autonomy to promote fetal well-being.
  2. What is the role of third-party payors in assisted reproductive processes such as genetic material donation, surrogacy, genetic manipulation, pre-embryo research and splitting, cryo preservation of occytes, sperm, pre-embryos.
  3. Does a woman have absolute autonomy over body?
  4. Provision of abortion services by trained OB/GYN physicians in the United States (many training programs don't teach this procedure).

Major Contributors to the Discussion of Reproductive Health and Technology Issues

  1. Pregnant woman
  2. Infertile woman
  3. Prospective father
  4. Pre-embryo/fetus
  5. Physicians
  6. State/society

Guiding Legal Principles
Roe v. Wade Balancing test

  1. Should respect for the pregnant woman's autonomy when she refuses a medical intervention preclude any approach other than to accept her decision?
  2. Should caregivers have recourse to coercive techniques of persuasion?
  3. When is there justification for court-ordered intervention?

Suggested Reading/References

  1. Flagler E, Baylis F, Rogers S. Bioethics for Clinicians: 12. Ethical dilemmas that arise in the care of pregnant women: rethinking maternal-fetal conflicts. Can Med Assoc J, June 15, 1997; 156(12): 1729-1732.
    Note: This article can be found through Ovid and will require an ID and password.
  2. The Doctor's Dilemma
    "Roe v. Wade"
    "Bowser Case"
    "Juarez Case"

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Medical College of Georgia
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Medical College of Georgia

Please email comments, suggestions or questions to
Alan Roberts, aroberts@mail.mcg.edu.
August 05, 2002